Vigil Neuroscience Expands VGL101 Phase 1 Trial to Australia – Received approval from the Human Research Ethics Committee in Australia to initiate a Phase 1... read more
Families & Caregivers
Sisters’ Hope Foundation for ALSP
Connecting ALSP patients, families and caregivers.
Sisters’ Hope Foundation is a 501(c)3 non-profit organization dedicated to ALSP patients around the world. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and creating connections for the ALSP community. Our mission is to see the first survivor of ALSP.
What is ALSP?
Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) is a rare neurological condition caused by an autosomal dominant genetic mutation in the CSF1R (colony-stimulating factor 1 receptor) gene. ALSP is characterized by symptoms of reduced cognitive function and mobility.
Thank you to Our 2022 Sponsors:
Interested in Sponsorship Opportunities, contact firstname.lastname@example.org
News & Stories
During the month of June, Alzheimer’s and Brain Awareness month, contribute to furthering ALSP understanding and research by donating to the Sisters’ Hope Foundation! Vigil... read more
Sisters’ Hope Foundation has been added to the NIH – Genetic and Rare Diseases Information Center under the disease name Hereditary Diffuse Leukoencephalopathy with spheroids.... read more