Natural History Study – Dr. Gelfand, UCSF
Great news! The University of California San Francisco site is now open! The University of California San Francisco is now...
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Life’s A Tripp Shirt Fundraiser
Today we are rolling out the Life's a Tripp shirt fundraiser for ALSP patient Albert Tripp! The online shop is...
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Happy New Year!
A New Year calls for making goals. SHF has set their fundraising goal for 2022! It's a hefty goal but...
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A Guide for Understanding ALSP & A Guide for Caregivers
It's amazing what can happen when we work as a team to raise awareness and provide support for rare diseases....
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Natural History Study – Open Sites
Great news! The Mayo Clinic in Jacksonville Florida, St. Joseph's Health Care in London Ontario and Parkinson's Disease & Movement...
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Genetic Testing in Canada is now available through Invitae.
Genetic Testing for ALSP patients in Canada: If you are an ALSP patient located in Canada and are interested in...
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Check out what all the fun was about at “Hope for the Holidays”
VIDEO: Thank you to everyone who made our 'Hope for the Holidays' auction a huge success! Check out what all...
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New Merchandise Available in the Online Store
You do not want to miss out on our newest merchandise available from Sisters' Hope Foundation. Your purchase directly helps...
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“Hope for the Holidays” Hope Auction was a huge success, raising $18,390.00
Sisters' Hope succeeded because of the support of so many volunteers and donations. Thank you to the Schuylkill Masonic Lodge...
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The ALSP patient registry pre-study survey is LIVE!
Completing this is the first step for patients who want to participate in the Vigil Neuroscience global digital ALSP patient...
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Vigil Neuroscience Enrolls First Subject in ALSP Study
Vigil Neuroscience, a biotechnology company harnessing the power of microglia for the treatment of neurodegenerative diseases, announced today the enrollment...
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Vigil Neuroscience hopes to eventually target ALSP
Vigil Neuroscience has revealed the first condition that it will target: a rare, genetic neurodegenerative disorder called ALSP, or adult-onset...
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Vigil Neuro Announces It Is Launching ALSP Programs
Vigil is conducting an observational natural history study with ALSP patients to better understand the disease and help us inform...
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Bone Marrow Transplant Study on Treatment of CSF1R-Related Leukoencephalopathy
This is the largest series of patients with CSF1R-related leukoencephalopathy receiving HSCT. The study concludes that HSCT can stabilize the...
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How To Host a Pink Lemonade Fundraiser for Sisters’ Hope Foundation
A lemonade stand fundraiser works best during the summer months. Hot days equals lots of thirsty supporters! What you’ll need...
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