ALSP News

Natural History Study – Dr. Gelfand, UCSF

Great news! The University of California San Francisco site is now open! The University of California San Francisco is now...
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Life’s A Tripp Shirt Fundraiser

Life’s A Tripp Shirt Fundraiser

Today we are rolling out the Life's a Tripp shirt fundraiser for ALSP patient Albert Tripp! The online shop is...
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Happy New Year!

Happy New Year!

A New Year calls for making goals. SHF has set their fundraising goal for 2022! It's a hefty goal but...
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A Guide for Understanding ALSP & A Guide for Caregivers

It's amazing what can happen when we work as a team to raise awareness and provide support for rare diseases....
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Natural History Study – Open Sites

Great news! The Mayo Clinic in Jacksonville Florida, St. Joseph's Health Care in London Ontario and Parkinson's Disease & Movement...
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Genetic Testing in Canada is now available through Invitae.

Genetic Testing in Canada is now available through Invitae.

Genetic Testing for ALSP patients in Canada: If you are an ALSP patient located in Canada and are interested in...
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Check out what all the fun was about at “Hope for the Holidays”

Check out what all the fun was about at “Hope for the Holidays”

VIDEO: Thank you to everyone who made our 'Hope for the Holidays' auction a huge success! Check out what all...
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New Merchandise Available in the Online Store

New Merchandise Available in the Online Store

You do not want to miss out on our newest merchandise available from Sisters' Hope Foundation. Your purchase directly helps...
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“Hope for the Holidays” Hope Auction was a huge success, raising $18,390.00

“Hope for the Holidays” Hope Auction was a huge success, raising $18,390.00

Sisters' Hope succeeded because of the support of so many volunteers and donations. Thank you to the Schuylkill Masonic Lodge...
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#GivingTuesday

#GivingTuesday

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The ALSP patient registry pre-study survey is LIVE!

Completing this is the first step for patients who want to participate in the Vigil Neuroscience global digital ALSP patient...
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Vigil Neuroscience Enrolls First Subject in ALSP Study

Vigil Neuroscience Enrolls First Subject in ALSP Study

Vigil Neuroscience, a biotechnology company harnessing the power of microglia for the treatment of neurodegenerative diseases, announced today the enrollment...
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Vigil Neuroscience hopes to eventually target ALSP

Vigil Neuroscience hopes to eventually target ALSP

Vigil Neuroscience has revealed the first condition that it will target: a rare, genetic neurodegenerative disorder called ALSP, or adult-onset...
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Vigil Neuro Announces It Is Launching ALSP Programs

Vigil Neuro Announces It Is Launching ALSP Programs

Vigil is conducting an observational natural history study with ALSP patients to better understand the disease and help us inform...
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Bone Marrow Transplant Study on Treatment of CSF1R-Related Leukoencephalopathy

Bone Marrow Transplant Study on Treatment of CSF1R-Related Leukoencephalopathy

This is the largest series of patients with CSF1R-related leukoencephalopathy receiving HSCT. The study concludes that HSCT can stabilize the...
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How To Host a Pink Lemonade Fundraiser for Sisters’ Hope Foundation

How To Host a Pink Lemonade Fundraiser for Sisters’ Hope Foundation

A lemonade stand fundraiser works best during the summer months. Hot days equals lots of thirsty supporters! What you’ll need...
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