Stories


Kim Belley’s ALSP Story

“In July, I had a genetics test done to see if I carry the CSF1R gene variant the same variant that has caused adult onset […]

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Heidi Edwards’ Story

I’m Heidi Edwards, President and founder of Sisters Hope Foundation, a non-profit organization supporting families struggling with Hereditary Diffuse leukodystrophy with spheroids or HDLS. HDLS […]

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