Heidi Edwards is the President and Founder of Sisters’ Hope Foundation. She holds a Bachelor of Arts in psychology from Alvernia University and a Master of Arts in Human Resource Management and Labor Relations from St. Francis University. She has worked in Human Resources and Recruiting for over twenty years.
Heidi’s passion is raising awareness and advocating for those affected by ALSP. Her journey with the disease started twenty years ago when her aunt was diagnosed, followed by her mother, uncle and two sisters.
In 2020, she knew she needed to continue pushing forward with Sisters’ Hope Foundation because her sisters were both showing signs of disease progression. As the only sister without the genetic mutation of the CSF1R gene, she needed to be their voice. Her mission to save future generations started with a Facebook group for her sisters called Heather and Holly’s Hope.
Heidi is a caregiver for her twin sister who is in the end stages of ALSP. Heidi’s husband is also battling a rare neuro-degenerative disease, Posterior Cortical Atrophy whom she also cares for at home.
Note: Holly lost her battle with ALSP on July 20, 2021 at the age of 44.